Family receives donation from Re/Max to help with son's medical expenses

Carter Kenly was born on July 30, 2015, and diagnosed at 5 days old with Joubert Syndrome, which is a rare genetic disorder affecting less than 1,000 known cases in the entire world and is characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing patterns and intellectual disability. Individuals with JS often have retinal, kidney or liver diseases requiring additional medical intervention.

Carter’s parents, Jessica Savage and Dan Kenly of Gorham, are always on the road back and forth to Boston Children’s Hospital. Carter has occupational therapy and vision therapy every week. According to the family, the costs associated with a child with JS are astronomical.

There is a conference being held in Phoenix, Ariz., in July of this year that Carter and his parents will be attending. They will have the opportunity to meet other families that are affected with this diagnosis and have the opportunity to meet with doctors that specialize in this syndrome so they can continue to learn more about JS.

Re/Max Northern Edge Realty made its donation to help Carter and his parents with their ongoing expenses and to assist them with the costs of attending the upcoming conference. If there is anyone else that would like to make a donation to assist Carter and his family, contact Jennifer Stewart at Re/Max Northern Edge Realty at (603) 723-4215 or email her at This email address is being protected from spambots. You need JavaScript enabled to view it..

Savage DonationPictured from the left, front row, Carl Mercier, Jennifer Stewart, Jessica Savage and her son Carter Kenly. Back row Christopher Lunn, Mark Danoski, Matt Martel and Steve Grone. (COURTESY PHOTO)